“I’m telling you that you definitely fit the diagnostic criteria for CFS“, that really wasn’t what I was expecting to hear last week.
That’s because 7 years earlier I had a similar conversation telling me I definitely didn’t have CFS/ME. (Note: Chronic Fatigue Syndrome & Myalgic Encephalopathy can be used interchangeably.)
I left the hospital confused, I know I should believe the consultant over the psychologist from 7 years earlier, but both where CFS specialists. And after 7 years of telling myself it’s not CFS it’s hard to accept the opposing opinion.
Nobody Knows What Chronic Fatigue Syndrome is!
That’s the problem with CFS, it boils down to an opinion on whether or not you fit the criteria. There is no test and no real understanding of the illness. The more I digested this Consultants opinion, the more things I’d tried to fight became obvious symptoms of Chronic Fatigue Syndrome.
Then I started to get frustrated – Had this conversation happened all those years earlier, I might have beat this by now. The Doctor seemed confident that with Graded Exercise Therapy and lifestyle changes I could beat this in 2 – 3 years.
Two to three years seems like a long time, my life is in tatters. I have some how spun plates for a decade, they are beginning to hit the ground and now I have another 2 -3 years before I can even hope for a possible recovery!
I went to the shops after a couple of days milling around, wondering who was right. There is no harm in trying to make some changes myself. I bought Co Enzyme Q10 and L Carnitine after hastily reading some articles that attested to there usefulness in treating the illness. I took them, kind of hoping for an instant fix yet in the back of my mind knowing if that was the case they’d prescribe them as a quick fix!
Fast forward a week or so, not much has changed. I check the post daily to see if the Doctor has written to me. He tested my blood to rule out lupus. But I watch ‘House M.D.’ and know it’s never lupus!
I’m also waiting for an appointment referring me to his graded exercise treatment (GET) programme. Normally if it’s something simple I can do myself, I’m straight online trying to do it myself. But this time I feel like I just need to wait, I need to understand what GET is before I jump in.
I’ve read hundreds of blog posts and Reddit entries on CFS/ME but there is so much conflicting information, It’s hard to know what to do! I’ve never been patient and in reality all I need right now is patience!
- Spelling, punctuation check.
Featured image add.
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